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Questions most often asked about CF | List Of CF Links | Connor's Current Meds | Recipes for CF Children | Miscellaneous CF stuff |
Miscellaneous CF stuff | |
The story of "65 Roses"
Posted by Charla Schriever on 11/01/2005 |
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"65 Roses" This is one story of how the term "65 Roses", standing for Cystic Fibrosis, came to be: "65 Roses" is what little children suffering from cystic fibrosis call their disease. As the following true story illustrates, the words are much easier to pronounce. Mary G. Weiss became a volunteer for the CFF in 1965, after learning that her 3 more... | |||
Welcome to Holland, by Emily Perl Kingsley
Posted by Charla Schriever on 11/01/2005 |
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I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this … When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make more... | |||
The Special Mother...
Posted by Charla Schriever on 11/01/2005 |
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The Special Mother... Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. This year thousands of mothers will give birth to a "less than perfect" baby. Did you ever wonder how the mothers of these angels are chosen? Somehow, I visualize God hovering over earth selecting his instruments for more... | |||
Through the Eyes Of CF
Posted by Charla Schriever on 11/01/2005 |
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Through the Eyes Of CF Risa, an Inspiration Hello, my name is Risa. I am 44 years old and I am am writing to share my story and offer inspiration to all of you live with cystic fibrosis. Discovery I knew that I had CF as a young child. At first I viewed CF through a child's eye as a source of attention from my family. This thought pattern worked more... | |||
Songs that touch the heart
Posted by Charla Schriever on 11/01/2005 |
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"Let Them Be Little" [Originally written and sung by Billy Dean] I can remember when you fit in the palm of my hand Felt so good in it, no bigger than a minute How it amazes me, you're changing with every blink Faster than a flower blooms they grow up all too soon So let them be little 'cause they're only that way for a while Give them hope, give more... | |||
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