CONNOR'S NEWS!!!!!!!!!!!  

65 rose bushes at Independence visitors center (16).JPG

This page is to update everyone on Connor's progress, life experiences, medical appointments, etc..  Check back often for news and photos.

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Posted by Charla Schriever on 02/08/2011
We will be Walking the Great Strides Walk in Las Vegas on April 9th 2011....To walk and/or donate click here..   more...
See what has happened in one year because of your help!!! Soon we will find a cure!!!!! 
Posted by Charla Schriever on 03/17/2008
Please take a look at what your donations last year have done and help us out one more year.  We don't want to keep asking for money either, but I know that you would do the same for your child.  In 2007 the median life expectancy raised to 36.7 years.  Let's keep going!  Thank you !   02/13/2008   Inspire Initiates Second Phase 3 Cystic Fibrosis   more...
Posted by Charla Schriever on 10/24/2007
Okay well Connor has been on a med called Tobi for almost a year. Last November he cultured PA (Pseudomonas) and he started on it. Well they finally took him off it and we are praying the PA doesn't come back. He will be off it for a month and then get a culture and if no PA shows then he will stay off it until he gets PA again. The tobi takes 20   more...
Connor's 3!!!! 
Posted by Charla Schriever on 10/24/2007
Connor turned three and we had a party at Grandma and Grandpa's house in Palmdale. Connor loved playing with all the kids. And he has been playing with all his toys ever since. Thanks to all of you who came and/or helped with the party! Connor had such a great time! It was so good to see him laughing and smiling all day. Love to you all!!!! Click   more...
Posted by Charla Schriever on 01/14/2007
[wigglesr.jpg]After missing the last time the Wiggles came to Kansas City, they are back!!! We bought tickets for Connor to see them in concert on Feb. 27th!!!!!!!!!! I am sooo excited to take him. He just loves anything Wiggles. He always watches them during his long treatments each day. He also was Anthony for Halloween, while little Mason was   more...
Sad News!!! Connor has pseudomonas :( 
Posted by Charla Schriever on 11/28/2006
  I am so sad right now I may not even make sense. And you most likely wont even understand what this means or why I feel so sad. Connor's CF doctor called and Connor has cultured pseudomonas :( That is so sad you don't even understand. I feel like a failure to my son. I mean I try so hard to keep hin healthy and I clean everything! And we use   more...
Doctor visit 
Posted by Charla Schriever on 08/16/2006
Connor is in the 60th for height and about the 70th for weight. He also hasn't been feeling well since we got back from California. The doctor said he has the start of an ear infection  and wants us to wait and see how the CF clinic wants to treat it. We go tomorrow at 8:30am and hopefully they will get a culture and it will be clear. Fingers   more...
Great Strides 
Posted by Charla Schriever on 07/15/2006
We did the Great Strides walk on May 13th, 2006. It was great. Mason and Connor were great during the whole thing! They loved the stroll. We raised over $3,000 for Connor's Crew!!! The Valencia walk raised over $180,000. And nationwide Great Strides made Millions to help find a cure for Cystic Fibrosis!!! Connor and Matt made it into the paper too!   more...
The Vest 
Posted by Charla Schriever on 07/15/2006
I don't think I ever wrote about getting the vest. We got it right before Mason was born. It is wonderful. SOOOOO much better then doing manual clapping and holding Connor done. He loves it. He favorite thing to watch is The Wiggles during treatments. He also learned to hold the mouth piece of the breathing treatment. So now he is a big boy and   more...
Connor in Cali 
Posted by Matt Schriever on 06/11/2006
I have a new section called "Connor's Family" it will have more pics and stuff later, but there you can see my new brother Mason and see what the family is up to. I will post pictures next week when Matt has more time to help post them. Connor is loving Cali. He has a new slide to play with and his pool in the back yard. We put his slide into the   more...
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