HI!!!

I just got off the phone with Aunt Karen and she gave me this link for your website!  I have so much to share with you, and can't wait to learn all that you have to share also. 

Here is the family connection

• Glen Gardner is Suzy's 1st cousin.
• Suzy is Matthew's mom? 
• Matthew is Connor's dad.
• Connor has CF
• Glen is Ethan's dad.
• Ethan is Aryia's dad.
• Aryia has CF.

Aryia has A-typical CF.  She is almost 5 years old.  So full of life.  She is small for her age at under the 10% for weight and less than the 1% for height.  She takes pancreacarb enzymes with every meal and snack.  We open the pill and pour the beads into a dry cup, she then tips that up and follows it with a swig of water.  She had 7-8 stools before we started her on those almost a year ago.  She does pulmicort and xeponex breathing therapy every night with her nebulizer.  She does rhinocort nasal spray at night to releive the post nasal drip that makes her gag and throwup in the morning.  She takes regular flinstones multivitamins but 2 instead of one.  She takes singular chewable every night to releive the tightness in her chest.  She takes tanihist oral if she gets a cold and we up her breathing therapy to 5 times a day.  We do not do the cpt, but we were just ordered the vest, which we are very excited about.  Children younger than 4 are too little for it but certainly it is something that you can look forward to, here is the link to see what I am talking about http://www.thevest.com/conditions/cf/default.asp?gs=patients .  They gave us a new nebulizer that is super awesome, it only dispenses the medicine when she draws in a breath.  Instead of dispensing it constantly.  That way she gets every last dose of the meds in her lungs where they are needed.  So we use the one that you have pictured and this one too... The new mask  is a Monaghan AeroEclipse with a small mask.  It is super cool. This is what it looks like... http://www.monaghanmed.com/copd_aeroeclipse.shtml 

Here is our link to our walk a thon.... http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=2862&idUser=79644

Also here is a link to a wonderful website that I frequent.  It has helped me sooo much, it is a message board.  http://messageboards.ivillage.com/iv-ppcysticfib

We live in Northern California.  Ethan and I (Beth) have been together for 14 years and will be celebrating our 10 year wedding anniversary this August.

We have 3 wonderful girls.  Alexiia who is the oldest and is 7 years old. Aryia who is almost 5, and baby Ava who will turn 1 on may31st.  We have ordered a sweat chloride test for the other 2 girls and are awaiting approval from the insurance company.

I know how devastating this news can be.  We are still reeling as well.  I'd really like to get to know you all better.  Email me at applehillgardner@sbcglobal.net or Instant message me on AIM at applehillgardner.  I am really interested in knowing how you found out, and what strains your son has, since we are still in the dark on that part.

{{{HUGS}}}

-Beth and family