Welcome all my friends and family. To get started, go up to the top right corner and click on sign in. There you can create a new user name and password so that you can join in on disscussions and respond to news. I hope you enjoy my site, lots of love, Connor :)
Hi, My name is Connor. I was born in 2004 and when I was 3 months old, my parents found out I had Cystic Fibrosis (
CF). It is a lung disease that causes cronic lung infections that may shorten my life. I do 2 1/2 hours of treatments daily to help keep my healthy. I don't let CF get me down. I am a fighter and will live the best life I can. Go to cff.org to learn more about CF or look on bottom of this page for some info as well.
My Grandpa and Uncle got this website started for me when I was a baby for a way for family to stay informed about me. My mom hasn't done much on here for the last few years and I am now taking over :)
A little about me...I am 8 1/2 and about to finish 2nd grade with straight A's. I also am excited because I got in the 99%tile for GATE and will start that in the fall for 3rd grade. I have a little brother named Mason who is 7 years old and a new baby sister who is 6 months old. I love them even though Mason can bug me sometimes. My favorite thing to eat is Pancakes. I love anything to do with Space and can't read enough books about it. I am taking piano lessons and also play basketball. I started Scouts last year and I love it. I got baptized last November when I turned 8 and I love church. My family is
very important to me and I am very blessed!
(Click on the great strides picture above to see my latest Great Strides Walk Video to help fight CF)
Click below to hear Connor's song.
What is Cystic Fibrosis?
Cystic fibrosis (CF) is a genetic disease affecting approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. These thick secretions also obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food.
About 65 Roses
"65 Roses" is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce.
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.
He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."
Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.
65 Roses® is a registered trademark of the Cystic Fibrosis Foundation.