CONNOR'S NEWS!!!!!!!!!!!  
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65 rose bushes at Independence visitors center (16).JPG

This page is to update everyone on Connor's progress, life experiences, medical appointments, etc..  Check back often for news and photos.

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Connor Video Montage 
Posted by Charla Schriever on 04/01/2006
Click here to view Connor's video montage. You need high speed to see and it is about 15 minutes total. Hope you all are doing good. We are doing great. Connor had his clinic visit on Thursday and he is doing great. They had a "vest" there for him to try on, and it fit perfectly. And now they are trying to get the insurance to pay for it. It is   more...
New Pictures 
Posted by Charla Schriever on 03/08/2006
     We finally got some new pictures to post. We had a very nice day the other week where it was in the high 70's. A nice change from the 30's and 40's. So we took Connor outside and he was loving walking all around. Of course I had my camera and took many pictures. Also last Friday we went on re-openning day to the Independence visiter's center.   more...
Great Strides 
Posted by Charla Schriever on 02/21/2006
Dear Family and Friends:   I am writing to ask for your help and enlist your support. I recently signed up to participate in GREAT STRIDES: Taking Steps to Cure Cystic Fibrosis, which is the Cystic Fibrosis Foundation’s annual, nationwide walk.   Cystic fibrosis (CF) is a life-threatening genetic disease that affects the lungs and digestive system.   more...
Connor had his CF clinic visit today... 
Posted by Charla Schriever on 01/27/2006
Weight 25 pounds, Height 31 inches, Oxygen level was 100% :) All in all they said he looked very good and was gaining weight perfect. He was taking 3 Creon 5 enzymes, but is now taking 4 Creon 5. They are sending us bottles of Creon 10 so instead of 4 pills, he will take 2 of the Creon 10's. They also showed us other ways we can help get the mucus   more...
New Christmas Pictures 
Posted by Charla Schriever on 01/08/2006
Spending Christmas in California was a lot of fun. We had two family Christmas parties to go to while we were there. Everyone loved seeing Connor, and couldn't believe how big he has gotten. Uncle Dylan loved playing with him. It was so cute. We stayed at Great- Grandma and Great-Grandpa's house while we were there. Connor loved walking all over   more...
Connor having fun in the snow 
Posted by Charla Schriever on 12/09/2005
We had a lot of snow here the other day. So today we decided to take Connor out and have some fun in it. The snow wasn't very good for making a snow man, but we still could have some fun. Connor loved having daddy take him down the hill. It was so cute. He was smiling almost the whole time. below is two links. One will take you to the pictures I   more...
Connor is going to be a big brother 
Posted by Charla Schriever on 11/21/2005
Connor has a little baby brother on the way. Due on April 14th. We wanted to wait to tell people until we had that baby tested for Cystic Fibrosis. It took awhile, but we got the results and this baby does not have CF!!! :) He is a carrier, but as long as he doesn't marry a carrier, it wont matter. We are all so happy! I just can't wait to see   more...
New Pictures 
Posted by Charla Schriever on 11/14/2005
I posted some new pictures. It is of Halloween and some we got done at JCPenny's on Connor's 1st Birthday. Halloween was so much fun. Connor loved helping us carve the pumkins. HE loved the feeling of the seeds. When we went trick or treating everyone loved that little dinosaur. We even went to his doctor's house. Connor walked right up to holding   more...
Connor's First Birthday 
Posted by Charla Schriever on 10/23/2005
      Well Connor is now 1 year old.  I can't believe how fast this year has gone. Thank you all for all your birthday wishes, cards, and gifts! It all was very thoughtful.        Connor seemed to have a fun time on his birthday. When we gave him his cake he grabbed an animal cookie and that went straight into his mouth. I worried he would choke on   more...
Connor went to hi Cardiology Clinic visit today... 
Posted by Charla Schriever on 10/13/2005
Well, I don't know if you remember but after Connor was born they found a heart murmur 3mm wide, and he had a narrow left artery. Well, good and maybe bad news. It turns out that the 3mm hole has closed!!! :) no more murmur :) And the narrow artery is fine now. But then they found another problem...His Pulmonary Artery is the size of a 10 year old.   more...
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